Sometimes my thoughts of my life now are fleeting glimpses of a life in limbo. Honestly, I wonder if things are worse with my multiple sclerosis, or MS, during the days before my scans. Though, my past MRI only showed old lesions and nothing that concerned my neurologist. I am sure I am overthinking it and any symptoms that seem worse or are new is just the “new normal and I better get used to it.
Recent issues and cognition and the fall months ago at the movie theater are why I think something is worse, but I will have to wait until I see my neurologist next month. She will call and tell me if something really bad is happening as she did before. I am just haunted by the time she ran blood work in the morning, and she called later that afternoon and told me to go straight to the emergency room as soon as I could.
That was because the medication, carbamazepine, I took for the terminal neuralgia made me weight ten pounds heavier from the fluid the meds made my body release. My blood had so little sodium in it I wound up in the intensive care unit for two days. There is no real chance of the occurring again, but the fear and my mind don’t know that. I guess this too might be a reasoning issue caused by my MS and lesion.
The Scans went about as expected and were both almost like a twenty-minute meditation session, but with having to hold absolutely still. I feel it necessary to warn anyone that gets claustrophobic will have an episode if you ever have an MRI scan on your head. This time the scans were at a local radiology retailer instead of at the hospital as before.
Their MRI machine was actually better before than at the place I had it this time. I cannot really say why that is, but the football like helmet your head is in seemed more confortable at the hospital. Though, that might be just what I remember and the MRI is constraining regardless.
The last CTA scan was on my leg when I broke my hip. For whatever reason my neurologist never got one on my head until now. She was shocked she never ran one before also. The CTA machine was much better and less confining than the MRI. A display above where my head entered the machine had my name, age and information on it for their needs.
I thought it was kind of cool looking up during the scans and seeing my name in lights. In an odd way it almost felt like a scoreboard to me, or maybe that was just my mind while I was quasi meditating and I was just imagining it. That could just be my mind playing tricks on me while getting my head scanned for the very disease that I am seeking help with so I can think straight. Oh the paradox of that line of thought.
I will at least find out what the scans showed at my May 2nd appointment with my neurologist.
Any thoughts that maybe my health care insurance and getting medicine might be getting easier is completely mistaken. My next shipment of Glatiramer was supposed to come this week from the place that filled it since summer 2017. However, Walgreens Prime Therapeutics are part of Blue Cross Blue Shield only and cannot fill it anymore. A few weeks ago I fed my Medicaid number to someone calling from Prime Therapeutics and took it and acted as if everything was okay. Now I know that phone agent and I were mistaken.
As of May first, I am on United Health Care Community Plan STARPlus health plan. The plan overall looks like it provides more money before and cost caps and more coverage in general in comparison with my old plan. Right now it appears there will be some things that have to change, but the zero dollar monthly premium makes them all tolerable.
As I wrote before, my endocrinologist said the sensors for my continuous glucose monitor, or CGM, are not covered. So that will be a change I must make when the plan starts and I run out of Medtronic Guardian 3 sensors I use now. Unfortunately that means no more auto mode on my Medtronic 670G. I am told Dexcom G5 CGM is the only system Medicaid covers, but I will have to verify that when I am in the new plan and I need more sensors to monitor my glucose levels.
My recent reports I get from the Medtronic’s Care Link show I am in range one hundred percent of the time for the two-week report. The one-month is at ninety-eight and the three-month reports show ninety-six percent. I changed my diet and ate way less crabs and I described in my blog before. That makes my interest in the two report greater since it reflects what I currently do daily. Though, this also makes me sad that auto mode and the sensors I use now will stop as soon as the last few Guardian 3 sensors I have are used up.
I am sure that I can get close to the great readings from auto mode I have now, but I am guessing that the perfect time in range is pretty much impossible to maintain without the system components and I currently use. Or maybe that thought that keeping a flawless time in range is just a defense mechanism so I will not feel the pressure I put on myself to stay in range all day every day.